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Table 1 Focus group participant characteristics

From: Patient and caregiver engagement in research: factors that influence co-enrollment in research

Participant CharacteristicsNumber of Participants (Percent)
Female16 (80%)
Caregiver18 (90%)
Prior exposure to institution18 (90%)
Prior exposure to research
  Previous approach17 (89.5%)a
  Previous participation16 (84.2%)a
Country of origin
  Canada13 (65%)
  Jamaica2 (10%)
  Philippines2 (10%)
  Ecuador1 (5%)
  Belgium1 (5%)
  Not specified1 (5%)
Ethnic background
  Caucasian11 (55%)
  Filipino3 (15%)
  Chinese1 (5%)
  Black1 (5%)
  Latin American1 (5%)
  Caucasian and Other1 (5%)
  Chinese and Black1 (5%)
  Chinese and Filipino1 (5%)
Highest level of education
  Master’s degree2 (10%)
  Undergraduate degree10 (50%)
  Diploma or certificate via community college, CEGEP, nursing school4 (20%)
  Diploma or certificate via trade, technical, vocational school1 (5%)
  Some trade school1 (5%)
  Some high school1 (5%)
  Elementary school1 (5%)
Total household income
   > $250, 0002 (10%)
  $200, 000 – $250, 0001 (5%)
  $150, 000 – $200, 0003 (15%)
  $100, 000 – $150, 0003 (15%)
  $90, 000 – $100, 0003 (15%)
  $80, 000 – $90, 0001 (5%)
  $40, 000 – $50, 0001 (5%)
  $20, 000 – $30, 0002 (10%)
  Prefer not to disclose4 (20%)
Marital status
  Married13 (65%)
  Divorced2 (10%)
  Living common law2 (10%)
  Single2 (10%)
  Separated1 (5%)
Primary decision-maker
  Interview participant16 (80%)
  Other family member3 (15%)
  Prefer not to disclose1 (5%)
Household members < 18 years old
  35 (25%)
  29 (45%)
  16 (30%)
Household members > 18 years old
  53 (15%)
  41 (5%)
  33 (15%)
  27 (35%)
  12 (10%)
  01 (5%)
Did not disclose3 (15%)
Another member in the household who has a chronic condition
  Yes9 (45%)
  No11 (55%)
  1. aOne participant declined to answer