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Table 1 Focus group participant characteristics

From: Patient and caregiver engagement in research: factors that influence co-enrollment in research

Participant Characteristics

Number of Participants (Percent)

Female

16 (80%)

Caregiver

18 (90%)

Prior exposure to institution

18 (90%)

Prior exposure to research

  Previous approach

17 (89.5%)a

  Previous participation

16 (84.2%)a

Country of origin

  Canada

13 (65%)

  Jamaica

2 (10%)

  Philippines

2 (10%)

  Ecuador

1 (5%)

  Belgium

1 (5%)

  Not specified

1 (5%)

Ethnic background

  Caucasian

11 (55%)

  Filipino

3 (15%)

  Chinese

1 (5%)

  Black

1 (5%)

  Latin American

1 (5%)

  Caucasian and Other

1 (5%)

  Chinese and Black

1 (5%)

  Chinese and Filipino

1 (5%)

Highest level of education

  Master’s degree

2 (10%)

  Undergraduate degree

10 (50%)

  Diploma or certificate via community college, CEGEP, nursing school

4 (20%)

  Diploma or certificate via trade, technical, vocational school

1 (5%)

  Some trade school

1 (5%)

  Some high school

1 (5%)

  Elementary school

1 (5%)

Total household income

   > $250, 000

2 (10%)

  $200, 000 – $250, 000

1 (5%)

  $150, 000 – $200, 000

3 (15%)

  $100, 000 – $150, 000

3 (15%)

  $90, 000 – $100, 000

3 (15%)

  $80, 000 – $90, 000

1 (5%)

  $40, 000 – $50, 000

1 (5%)

  $20, 000 – $30, 000

2 (10%)

  Prefer not to disclose

4 (20%)

Marital status

  Married

13 (65%)

  Divorced

2 (10%)

  Living common law

2 (10%)

  Single

2 (10%)

  Separated

1 (5%)

Primary decision-maker

  Interview participant

16 (80%)

  Other family member

3 (15%)

  Prefer not to disclose

1 (5%)

Household members < 18 years old

  3

5 (25%)

  2

9 (45%)

  1

6 (30%)

Household members > 18 years old

  5

3 (15%)

  4

1 (5%)

  3

3 (15%)

  2

7 (35%)

  1

2 (10%)

  0

1 (5%)

Did not disclose

3 (15%)

Another member in the household who has a chronic condition

  Yes

9 (45%)

  No

11 (55%)

  1. aOne participant declined to answer