|
Parents (n = 45)
| |
|---|
|
Female, n (%)
|
38 (84%)
|
|
Race/Ethnicity, n (%)
|
|
• White
|
43 (96%)
|
|
• Non-White*
|
2 (4%)
|
|
• Hispanic/Latino
|
4 (9%)
|
|
Child (n = 39)**
| |
|
Female, n (%)
|
29 (74%)
|
|
Mean age, years (SD)
|
13.7 (4.6)
|
|
Age group, n (%)
|
|
• 6 to 12 years old
|
17 (44%)
|
|
• 13 to 17 years old
|
13 (33%)
|
|
• 18 to 21 years old
|
9 (23%)
|
|
Mean age disease onset, years (SD)
|
7.9 (4.6)
|
|
Mean disease duration, years (SD)
|
5.8 (4.7)
|
- *non-white included: Asian (n = 1), other (n = 1); youth Asian (n = 1), other (n = 4)
- **Six parent couples participated total
