Parents (n = 45) | Â |
---|---|
Female, n (%) | 38 (84%) |
Race/Ethnicity, n (%) | |
• White | 43 (96%) |
• Non-White* | 2 (4%) |
• Hispanic/Latino | 4 (9%) |
Child (n = 39)** | Â |
Female, n (%) | 29 (74%) |
Mean age, years (SD) | 13.7 (4.6) |
Age group, n (%) | |
• 6 to 12 years old | 17 (44%) |
• 13 to 17 years old | 13 (33%) |
• 18 to 21 years old | 9 (23%) |
Mean age disease onset, years (SD) | 7.9 (4.6) |
Mean disease duration, years (SD) | 5.8 (4.7) |