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Table 1 (abstract A41). Prevalence of pain, fatigue, sensory abnormalities, exercise intolerance, and fibromyalgia in 107 patients with PANS compared with 70 controls without psychiatric symptoms

From: Proceedings of the 2019 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Annual Scientific Meeting

Variable Patient reported ever Patient reported for ≥ 3 months Control reported
Any pain not due to injury, N (%) 98 / 107 (92%) 73 / 107 (68%) 24 / 70 (34%)
Location of pain, N (%)
 Limb 83 / 107 (78%) 38 / 107 (36%) 2 / 70 (3%)
 Upper back 53 / 107 (50%) 20 / 107 (19%) 0 / 70 (0%)
 Lower back 62 / 107 (58%) 25 / 107 (23%) 0 / 70 (0%)
 Neck 67 / 107 (63%) 26 / 107 (24%) 0 / 70 (0%)
 Jaw 35 / 107 (33%) 8 / 107 (7%) 0 / 70 (0%)
 Chest 47 / 107 (44%) 12 / 107 (11%) 0 / 70 (0%)
 Abdomen 89 / 107 (83%) 51 / 107 (48%) 10 / 70 (14%)
 Headaches 91 / 107 (85%) 59 / 107 (55%) 18 / 70 (26%)
Moderate or severe symptoms reported on the fibromyalgia ACR screening tool, N (%)
 Daytime fatigue 80 / 107 (75%) 43 / 107 (40%) 0 / 70 (0%)
 Waking unrefreshed 82 / 107 (77%) 45 / 107 (42%) 0 / 70 (0%)
 Cognitive symptoms 85 / 107 (79%) 41 / 107 (38%) 1 / 70 (1%)
Exercise intolerance, N (%) 64 / 107 (60%) 28 / 107 (26%) 0 / 70 (0%)
Sensory disturbances, N (%) 69/107 (65%) 48/107 (45%) 2/70 (3%)
 Cold intolerance 36 / 107 (34%) 10 / 107 (9%) 2 / 70 (3%)
 Heat intolerance 38 / 107 (36%) 16 / 107 (15%) 1 / 70 (1%)
 Noise sensitivity 76 / 107 (71%) 39 / 107 (36%) 0 / 70 (0%)
 Light sensitivity 71 / 107 (66%) 35 / 107 (33%) 1 / 70 (1%)
 Smell/taste sensitivity 64 / 107 (60%) 28 / 107 (26%) 2 / 70 (3%)
 Touch/texture sensitivity 66 / 107 (62%) 28 / 107 (26%) 1 / 70 (1%)
 Shooting or burning pain 33 / 107 (31%) 8 / 107 (7%) 1 / 70 (1%)
 Numbness 17 / 107 (16%) 1 / 107 (1%) 0 / 70 (0%)