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Table 1 (abstract A41). Prevalence of pain, fatigue, sensory abnormalities, exercise intolerance, and fibromyalgia in 107 patients with PANS compared with 70 controls without psychiatric symptoms

From: Proceedings of the 2019 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Annual Scientific Meeting

Variable

Patient reported ever

Patient reported for ≥ 3 months

Control reported

Any pain not due to injury, N (%)

98 / 107 (92%)

73 / 107 (68%)

24 / 70 (34%)

Location of pain, N (%)

 Limb

83 / 107 (78%)

38 / 107 (36%)

2 / 70 (3%)

 Upper back

53 / 107 (50%)

20 / 107 (19%)

0 / 70 (0%)

 Lower back

62 / 107 (58%)

25 / 107 (23%)

0 / 70 (0%)

 Neck

67 / 107 (63%)

26 / 107 (24%)

0 / 70 (0%)

 Jaw

35 / 107 (33%)

8 / 107 (7%)

0 / 70 (0%)

 Chest

47 / 107 (44%)

12 / 107 (11%)

0 / 70 (0%)

 Abdomen

89 / 107 (83%)

51 / 107 (48%)

10 / 70 (14%)

 Headaches

91 / 107 (85%)

59 / 107 (55%)

18 / 70 (26%)

Moderate or severe symptoms reported on the fibromyalgia ACR screening tool, N (%)

 Daytime fatigue

80 / 107 (75%)

43 / 107 (40%)

0 / 70 (0%)

 Waking unrefreshed

82 / 107 (77%)

45 / 107 (42%)

0 / 70 (0%)

 Cognitive symptoms

85 / 107 (79%)

41 / 107 (38%)

1 / 70 (1%)

Exercise intolerance, N (%)

64 / 107 (60%)

28 / 107 (26%)

0 / 70 (0%)

Sensory disturbances, N (%)

69/107 (65%)

48/107 (45%)

2/70 (3%)

 Cold intolerance

36 / 107 (34%)

10 / 107 (9%)

2 / 70 (3%)

 Heat intolerance

38 / 107 (36%)

16 / 107 (15%)

1 / 70 (1%)

 Noise sensitivity

76 / 107 (71%)

39 / 107 (36%)

0 / 70 (0%)

 Light sensitivity

71 / 107 (66%)

35 / 107 (33%)

1 / 70 (1%)

 Smell/taste sensitivity

64 / 107 (60%)

28 / 107 (26%)

2 / 70 (3%)

 Touch/texture sensitivity

66 / 107 (62%)

28 / 107 (26%)

1 / 70 (1%)

 Shooting or burning pain

33 / 107 (31%)

8 / 107 (7%)

1 / 70 (1%)

 Numbness

17 / 107 (16%)

1 / 107 (1%)

0 / 70 (0%)