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Table 1 Baseline demographic and clinical characteristics of patients with juvenile primary fibromyalgia syndrome in the CARRA Legacy Registry

From: Demographic, clinical, and treatment characteristics of the juvenile primary fibromyalgia syndrome cohort enrolled in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry

Variable

Value

Age in years at diagnosis (Mean ± SD)

15.4 ± 2.2

Sex (n, %)

 Male

33 (16%)

 Female

168 (84%)

Race (n, %)

 White

171 (85%)

 Black/African-American

15 (8%)

 American Indian or Alaskan Native

1 (1%)

 Asian

4 (2%)

 Mixed race

5 (2%)

 Other

5 (2%)

Ethnicity (n, %)

 Not Hispanic

167 (83%)

 Hispanic

34 (17%)

Annual household income (n, valid %)

 < $25,000

23 (15%)

 $25–$49,999

18 (12%)

 $50–$74,999

29 (19%)

 $75–$99,999

22 (14%)

 $100–$150,000

34 (22%)

 > $150,000

30 (19%)

 Unknown/missing

45

Body Mass Index (Mean ± SD)

24.2 ± 6.1

Symptom duration in years prior to diagnosis (Mean ± SD)

1.7 ± 2.1

Symptoms endorsed for past month

 Widespread musculoskeletal pain

164 (91%)

 Pain modulation with anxiety or stress

121 (80%)

 Pain modulation with physical activity

117 (75%)

 Frequent headaches

111 (68%)

 Pain modulation with weather change

86 (61%)

 Nonrestorative sleep

94 (52%)

 Frequent awakenings

75 (42%)

 Increased sleep latency

74 (41%)

 Numbness and tingling of extremities

48 (32%)

 Anxiety and/or depression

40 (28%)

 Hypermobility on exam

35 (28%)

 Subjective soft tissue swelling of extremities

32 (22%)

 Irritable bowel symptoms

24 (16%)

 Hypersomnia

25 (14%)