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Table 1 Baseline demographic and clinical characteristics of patients with juvenile primary fibromyalgia syndrome in the CARRA Legacy Registry

From: Demographic, clinical, and treatment characteristics of the juvenile primary fibromyalgia syndrome cohort enrolled in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry

VariableValue
Age in years at diagnosis (Mean ± SD)15.4 ± 2.2
Sex (n, %)
 Male33 (16%)
 Female168 (84%)
Race (n, %)
 White171 (85%)
 Black/African-American15 (8%)
 American Indian or Alaskan Native1 (1%)
 Asian4 (2%)
 Mixed race5 (2%)
 Other5 (2%)
Ethnicity (n, %)
 Not Hispanic167 (83%)
 Hispanic34 (17%)
Annual household income (n, valid %)
 < $25,00023 (15%)
 $25–$49,99918 (12%)
 $50–$74,99929 (19%)
 $75–$99,99922 (14%)
 $100–$150,00034 (22%)
 > $150,00030 (19%)
 Unknown/missing45
Body Mass Index (Mean ± SD)24.2 ± 6.1
Symptom duration in years prior to diagnosis (Mean ± SD)1.7 ± 2.1
Symptoms endorsed for past month
 Widespread musculoskeletal pain164 (91%)
 Pain modulation with anxiety or stress121 (80%)
 Pain modulation with physical activity117 (75%)
 Frequent headaches111 (68%)
 Pain modulation with weather change86 (61%)
 Nonrestorative sleep94 (52%)
 Frequent awakenings75 (42%)
 Increased sleep latency74 (41%)
 Numbness and tingling of extremities48 (32%)
 Anxiety and/or depression40 (28%)
 Hypermobility on exam35 (28%)
 Subjective soft tissue swelling of extremities32 (22%)
 Irritable bowel symptoms24 (16%)
 Hypersomnia25 (14%)