Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis: a scoping review

Kip, Michelle M. A.; Currie, Gillian; Marshall, Deborah A.; Grazziotin Lago, Luiza; Twilt, Marinka; Vastert, Sebastiaan J.; Swart, Joost F.; Wulffraat, Nico; Yeung, Rae S. M.; Benseler, Susanne M.; IJzerman, Maarten J.

doi:10.1186/s12969-019-0321-x

Pediatric Rheumatology

Table 3 Overview of data sources used to obtain resource use

From: Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis: a scoping review

Category	Type of resource use item	Total	Source from which resource use was obtained [N (references)]
Category	Type of resource use item	(N [references])	Questionnaire / inquiry with parent(s) or caregivers / child; recall	Chart review / medical records / patient files	Published / available data(base) or literature	Physician inquiry / caregiver inquiry/ expert opinion	(Case) report forms / collected during study (intervention)	From hospital	From health insurer
Medical costs	Medication	16 [9, 32,33,34, 36,37,38,39,40,41,42,43,44, 47,48,49]	8 [9, 34, 36,37,38,39, 41, 42]	5 [33, 37, 39, 41, 44]	5 [32, 40, 47,48,49]	4 [42, 44, 47, 48]	2 [47, 48]		1 [43]
	Outpatient and inpatient hospital visits	16 [9, 32,33,34, 36,37,38,39,40,41,42, 44, 47,48,49,50]	9 [9, 34, 36,37,38,39, 41, 42, 50]	5 [33, 37, 39, 41, 44]	5 [32, 40, 47,48,49]	1 [44]	3 [44, 47, 48]
	Medical professional visits	14 [9, 32, 34, 36,37,38, 40,41,42, 44, 47,48,49,50]	8 [9, 34, 36,37,38, 41, 42, 50]	3 [37, 41, 44]	5 [32, 40, 47,48,49]	4 [38, 44, 47, 48]	3 [38, 47, 48]
	Other medical visits (including paramedical care)	12 [32, 33, 37,38,39, 41, 42, 44, 46, 47, 48, 50]	9 [33, 35, 37,38,39, 41, 42, 46, 50]	3 [39, 41, 44]	3 [32, 47, 48]	4 [38, 44, 47, 48]	3 [38, 47, 48]
	Laboratory tests	14 [9, 32,33,34, 36, 38,39,40,41,42, 44, 47,48,49]	6 [9, 34, 36, 38, 39, 41]	4 [33, 39, 41, 44]	5 [32, 40, 47,48,49]	2 [42, 44]	2 [47, 48]
	Imaging	11 [9, 32,33,34, 36, 38, 40, 44, 47,48,49]	4 [9, 34, 36, 38]	1 [33]	5 [32, 40, 47,48,49]	1 [44]	3 [44, 47, 48]
	Splints and/or devices	11 [9, 33, 34, 36, 37, 40,41,42, 47, 48, 50]	10 [9, 33, 34, 36, 37, 41, 42, 47, 48, 50]		1 [40]
	Supplements and/or alternative medicine (e.g. vitamins, minerals, herbal medicine)	8 [35, 38, 41, 42, 46,47,48,49]	5 [35, 38, 41, 42, 46]	1 [41]	3 [47,48,49]	3 [42, 47, 48]	2 [47, 48]
	Drug administration costs	6 [32, 37, 39, 47,48,49]	1 [39]	2 [37, 39]	4 [32, 47,48,49]		2 [47, 48]
	Overhead/fixed resources	1 [38]						1 [38]
Out-of-pocket patient/family costs	Transportation costs	10 [9, 33, 34, 36, 37, 39, 41, 42, 44, 50]	10 [9, 33, 34, 36, 37, 39, 41, 42, 44, 50]
	(Other) out-of-pocket costs	7 [33, 35, 37, 41, 42, 44, 50]	7 [33, 35, 37, 41, 42, 44, 50]
	Social care services/home care/ private and community services	4 [9, 34, 41, 42]	3 [9, 41, 42]			1 [34]
	School costs	3 [33, 42, 50]	3 [33, 42, 50]
Productivity costs	Productivity loss of caregivers (including informal caregiving)	12 [9, 33, 34, 36,37,38,39, 42, 44, 45, 49, 50]^a	10 [9, 33, 34, 36,37,38,39, 42, 44, 50]		2 [45, 49]
	Missed school days and productivity loss of patients	6 [9, 34, 36, 41, 42, 50]	5 [9, 34, 36, 42, 50]	1 [41]
	Missed school days of siblings	1 [50]	1 [50]

This table shows the resource items that are included in the 20 articles from this scoping review, and the data sources that are used to obtain this resource use. The number of articles for each of the different data sources, and the accompanying references, are provided
^aPrince et al. (2011) [44] did provide information on which data source they intended to use to collect productivity losses among caregivers, but they were not able to include it in the final evaluation due to lack of available data

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ISSN: 1546-0096

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