Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis: a scoping review

Kip, Michelle M. A.; Currie, Gillian; Marshall, Deborah A.; Grazziotin Lago, Luiza; Twilt, Marinka; Vastert, Sebastiaan J.; Swart, Joost F.; Wulffraat, Nico; Yeung, Rae S. M.; Benseler, Susanne M.; IJzerman, Maarten J.

doi:10.1186/s12969-019-0321-x

Pediatric Rheumatology

Table 1 Characteristics of included studies

From: Seeking the state of the art in standardized measurement of health care resource use and costs in juvenile idiopathic arthritis: a scoping review

Country	Study	Analysis type [16]^a	Resource use included^b	Time horizon
Canada	Bernatsky et al. (2007) [36]	Cost description	Health care Productivity School days lost	1 year
	Ens et al. (2013) [37]	Cost description	Family out-of-pocket Productivity	1 year
	Luca et al. (2016) [40]	Full economic evaluation	Health care	5 years
	Toupin et al. (2009) [35]	Resource use	Family out-of-pocket (complementary and alternative health care only)	1 year
	Ungar et al. (2011) [49]	Full economic evaluation	Health care Productivity	1 year
Finland	Haapasaari et al. (2004) [39]	Cost description	Health care Family out-of-pocket Productivity	1 year
Finland	Pohjankoski et al. (2011) [43]	Cost-outcome description	Health care	1 year
Germany	Minden et al. (2004) [41]	Cost description	Health care Family out-of-pocket Productivity	1 year
Germany	Minden et al. (2009) [42]	Cost description	Health care Education Family out-of-pocket Productivity School days lost	1 year
The Netherlands	Prince et al. (2011) [44]	Cost-outcome description	Health care	1 year
United Kingdom	Angelis et al. (2016) [34]	Cost-outcome description	Health care Family out-of-pocket Productivity	1 year
	Epps et al. (2005) [38]	Full economic evaluation	Health care Productivity	6 months
	Shepherd et al. (2016) [32]	Full economic evaluation	Health care	30 years
	Thornton et al. (2008.1 and 2008.2) [47, 48]	Cost description	Health care	1 year
United States	Allaire et al. (1992) [33]	Cost description	Health care Education costs Family out-of-pocket Productivity	1 year
	Rasu et al. (2015) [45]	Resource use	Productivity	9 years
	Seburg et al. (2015) [46]	Resource use	Family out-of-pocket (complementary and alternative health care only)	1 year (inferred, but not reported clearly)
Multiple countries (Bulgaria, France, Germany, Italy, Spain, Sweden, United Kingdom)	Kuhlmann et al. (2016) [9]	Cost-outcome description	Health care Social services Family out-of-pocket Productivity	1 year
Multiple countries (France, Germany, the Netherlands, United Kingdom, United States)	Shenoi et al. (2018) [50]	Cost-outcome description	Health care Education Family out-of-pocket Productivity School days lost	Assistive devices: over past 4 weeks as well from time since JIA onset. Productivity: 2 months

This table shows an overview of the studies included in the scoping review, including the country in which it was performed, the analysis type, the resource use included and the time horizon applied
^aStudies quantifying only resource use were classified as such. All studies that describe both resource use and costs were classified according to Drummond et al, 2005 [16]
^bThe studies were categorized as including health care costs, other government agency costs (education and social services), family out-of-pocket costs, productivity costs and school time lost. These are broad categories only, and does not indicate exhaustive inclusion within the category

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ISSN: 1546-0096

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