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Table 1 Characteristics of school-aged JIA patients recorded in the years 2000, 2003, 2006, 2009, 2012, and 2015

From: Participation in school sports among children and adolescents with juvenile idiopathic arthritis in the German National Paediatric Rheumatologic Database, 2000–2015: results from a prospective observational cohort study

  2000 2003 2006 2009 2012 2015
No. of patients 1463 2339 3020 3526 3722 5879
Age, years 12.3 ± 3.2 12.6 ± 3.3 12.7 ± 3.4 12.6 ± 3.3 13.7 ± 2.5 13.1 ± 3.3
BMI, kg/m2 19.4 ± 3.8 19.4 ± 3.9 19.4 ± 4.8 19.7 ± 2.8 19.1 ± 3.2
Female, no. (%) 898 (61.4) 1464 (62.4) 1901 (62.9) 2246 (63.7) 2374 (63.8) 3844 (65.4)
Disease duration, years 4.9 ± 3.6 5.5 ± 3.3 5.3 ± 3.5 5.1 ± 3.3 5.5 ± 3.6 5.9 ± 4.0
Age at disease onset, years 7.4 ± 4.1 7.7 ± 4.2 7.7 ± 4.3 7.8 ± 4.2 8.5 ± 4.2 7.9 ± 4.4
JIA category, no. (%)
 RF-positive polyarthritis 51 (3.5) 59 (2.5) 65 (2.2) 99 (2.8) 114 (3.1) 145 (2.5)
 RF-negative polyarthritis 206 (14.1) 9 (12.3) 461 (15.3) 495 (14.0) 645 (17.3) 1084 (18.4)
 Systemic JIA 105 (7.2) 127 (5.4) 150 (5.0) 164 (4.7) 128 (3.4) 264 (4.5)
 Persistent oligoarthritis 526 (36.0) 943 (40.2) 1238 (41.0) 1637 (46.4) 1479 (39.7) 2165 (36.9)
 Extended oligoarthritis 140 (9.6) 157 (6.7) 180 (6.0) 225 (6.4) 349 (9.4) 652 (11.1)
 Psoriatic arthritis 133 (9.1) 254 (10.8) 275 (9.1) 234 (6.6) 225 (6.0) 342 (5.8)
 Enthesitis-related arthritis 196 (13.4) 400 (17.0) 528 (17.5) 570 (16.2) 664 (17.8) 1052 (17.9)
 Unclassified JIA 106 (7.2) 110 (4.7) 123 (4.0) 102 (2.9) 118 (3.2) 175 (2.9)
 cJADAS-10 5.8 ± 5.5 4.3 ± 4.7 4.3 ± 4.8 4.0 ± 4.6 4.0 ± 4.7 4.0 ± 4.7
 PGA scoreφ 1.7 ± 1.7 1.3 ± 1.7 1.4 ± 1.7 1.3 ± 1.7 1.4 ± 1.8 1.2 ± 1.8
 Inactive disease*, no. (%) 429 (30.0) 952 (41.4) 1229 (41.3) 1444 (42.6) 1423 (39.8) 3130 (54.6)
 No. of joints with active disease 3.2 ± 5.7 1.6 ± 3.4 1.6 ± 3.6 1.5 ± 3.3 1.3 ± 3.2 1.1 ± 2.9
 ESR, mm/h 10.7 ± 15.1 11.7 ± 12.5 12.6 ± 14.6 11.7 ± 12.6 10.1 ± 10.7 11.2 ± 12.8
 C-HAQ total score 0.3 ± 0.5 0.2 ± 0.4 0.2 ± 0.4 0.2 ± 0.4 0.2 ± 0.4 0.2 ± 0.4
 No functional limitations†, no. (%) 738 (51.3) 1300 (55.8) 1717 (58.8) 2151 (61.4) 2280 (61.8) 3465 (59.9)
 Patient-reported well-beingφ 1.8 ± 2.1 1.7 ± 2.0 1.7 ± 2.0 1.6 ± 2.0 1.6 ± 2.1 1.8 ± 2.2
 Patient-reported painφ 1.6 ± 2.3 1.6 ± 2.2 1.6 ± 2.2 1.6 ± 2.3 1.7 ± 2.5 1.8 ± 2.5
 Patient-reported fatigueφ 1.5 ± 2.5 1.5 ± 2.5
 Patient-reported copingφ 1.6 ± 0.9 1.6 ± 0.9 1.4 ± 2.1 1.4 ± 2.0 1.3 ± 2.1 1.4 ± 2.1
Treatment in past 12 months, no. (%)
 No systemic GCs 1103 (78.8) 1768 (81.3) 2323 (85.2) 2535 (88.5) 2683 (89.4) 4519 (92.4)
 Low-dose GCs (< 0.2 mg/kg) 244 (17.4) 336 (15.4) 343 (12.6) 246 (8.6) 258 (8.6) 236 (4.8)
Combination of high-dose GCs/
 pulse therapy 10 (0.7) 11 (0.5) 14 (0.5) 16 (0.5) 19 (0.5) 29 (0.5)
 Intra-articular GCs 255 (18.2) 195 (9.0) 299 (11.0) 317 (11.1) 261 (8.7) 434 (8.9)
 Any conventional synthetic DMARD 674 (48.9) 1013 (48.6) 1496 (56.0) 1672 (54.7) 1861 (58.0) 1828 (30.7)
 Any biologic DMARD 11 (0.8) 114 (11.3) 295 (9.8) 432 (14.1) 650 (20.6) 1140 (22.3)
 Regular exercise in leisure time (patients aged ≥13)‡, no. (%) 2174 (72.9) 2677 (77.1) 3029 (82.9) 2409 (79.1)
Physical therapies, no. (%)
 Physiotherapy 972 (67.9) 1299 (56.8) 1645 (55.9) 1714 (50.4) 1844 (51.0) 2830 (49.9)
 Kinetotherapeutic bath 132 (9.2) 110 (4.8) 130 (4.4) 123 (3.6) 96 (2.7) 147 (2.6)
 Occupational therapy 119 (8.3) 200 (8.7) 316 (10.7) 318 (9.3) 381 (10.5) 567 (10.0)
 No physical therapy 401 (28.0) 903 (39.5) 1177 (40.0) 1557 (45.7) 1679 (46.5) 2687 (47.4)
  1. JIA juvenile idiopathic arthritis RF rheumatoid factor, cJADAS-10 10-joint clinical Juvenile Arthritis Disease Activity Score, PGA physician’s global assessment, ESR erythrocyte sedimentation rate, C-HAQ Childhood Health Assessment Questionnaire; GC, glucocorticoid, DMARD disease-modifying antirheumatic drug
  2. *Defined by a PGA score of zero
  3. †Defined by a C-HAQ score of zero
  4. φAssessed on a numerical rating scale (maximum score 10) by patients aged ≥13
  5. ‡‘daily/3–5 times a week/1–2 times a week’ vs. ‘less than once a week/never’