Fig. 3
From: Living with autoinflammatory diseases: identifying unmet needs of children, adolescents and adults
Effect of the pilot school intervention on Health Related Quality of Life in autoinflammatory diseases. The effect of the pilot school intervention on the transformed score in the domain understanding, disease impact and the total transformed score Health Related Quality of Life (HRQoL) was determined using the DISABKIDS instrument in children with autoinflammatory diseases and their parents. Children/Adolescents with AID (light grey) and their parents (dark grey) assessed the effect of the intervention on the transformed score in the domain understanding (lines a), the domain impact disease (lines b) and the total transformed score HRQoL (bars a and b). The effect of the intervention was evaluated by the DISABKIDS-questionnaire. According to the domain understanding (a), impact understanding (b) and the total score HRQoL (a and b) the intervention has a positive, yet not sustained effect on the HRQoL of patients with AID