Skip to main content

Table 1 Demographics of YP transferred from pediatric rheumatology to the adult rheumatology clinic and the adolescent JIA-clinic between 2009 and 2015

From: Successful implementation of a clinical transition pathway for adolescents with juvenile-onset rheumatic and musculoskeletal diseases

 

YP transferred to the adult clinic (n = 78)

YP transferred to the adolescent JIA-clinic (n = 76)

Transfer period

2009–2015

2012–2015

Gender Female (%)

71%

56%

Mean age (SD) at time of study inclusion

22.2 (2.4)

18.6 (2.3)

Mean age (SD) at transfer

17.8 (1.5)

15.2 (2.1)

Diagnosis (n / %)

  

 • JIA – oligoarticular

• 21 / 27

• 26 / 37

 • JIA – polyarticular

• 15 / 19

• 21 /30

 • JIA – PSA

• 3 / 4

• 3 /4

 • JIA – ERA

• 8 / 10

• 7 /10

 • SLE

• 15 / 19

• 1 /2

 • Other (e.g. GPA, FMF)

• 16 / 21

• 12 /17

Disease activity before transfer (median, IQR)

  

 • Number of tender joints

• 0 (0–0)

• 0 (0–0)

 • Number of swollen joints

• 0 (0–0)

• 0 (0–0)

 • ESR

• 8 (3–17)

• 8 (3–15)

Disease activity after transfer

(median, IQR)

  

 • Number of tender joints

• 0.(0–0)

• 0 (0–1)

 • Number of swollen joints

• 0.(0–0)

• 0 (0–1)

 • ESR

• 9 (4–19)

• 8 (3–15)

  1. Abbreviations: JIA Juvenile Idiopathic Arthritis, PsA Psoriatic Arthritis, ERA Enthesitis Related Arthritis, SLE Systemic Lupus Erythematosus, GPA Granulomatosis with Polyangiitis, FMF Familial Mediterranean Fever