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Table 1 (abstract P077). Clinical characteristics of the cohort according to level of discrepancy between the parent assessment of overall disease activity (PDA) and the parent assessment of overall well-being (PWB).

From: Proceedings of the 25th European Paediatric Rheumatology Congress (PReS 2018)

PDA vs PWB

Total

Agreement

Low discordance

High discordance

Median (ICR)

≤+/-1

PDA >1-3 worse

PWB >1-3 worse

PDA >3 worse

PWB >3 worse

Female gender, n (%)

5956 (66.2)

4452 (65.4)

515 (70.3)

477 (69.1)

274 (64.9)

238 (69.8)

Age at visit (years)

11.6 (7.7; 14.8)

11.5 (7.6; 14.8)

11.3 (7.6; 14.8)

12.7 (8.7; 15.6)

10.8 (7.1; 14.9)

12.6 (9.3; 15.4)

Disease duration

4.0 (1.8; 7.0)

4.0 (1.9; 7.0)

3.5 (1.3; 6.7)

4.0 (1.8; 7.4)

3.5 (1.3; 6.6)

3.9 (1.8; 7.2)

Active Joints

0 (0; 2)

0 (0; 1)

1 (0; 3)

0 (0; 2)

1 (0; 2)

0 (0; 2)

Morning stiffness, n (%)

2923 (33.7)

1875 (28.6)

400 (56.2)

301 (45.2)

222 (54.4)

125 (38.1)

Stiffness duration (min)

15-30

15-30

15-30

15-30

15-30

<15

Pain score

1.0 (0; 3.5)

0.5 (0; 2.5)

3.5 (1.5; 5.5)

2.0 (0.5; 5.0)

2.5 (0.0; 5.0)

2.0 (0.0; 5.0)

Quality of Life

3 (1; 7)

2 (0; 6)

5 (3; 9)

7 (4; 11)

4 (2; 8)

8 (4; 11)

  1. Values are the median (1st, 3rd quartile), unless indicated n (%). PWB, parent global assessment of overall well-being (range 0-10); PDA, parent global assessment of disease activity (range 0-10)