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Table 1 (abstract P077). Clinical characteristics of the cohort according to level of discrepancy between the parent assessment of overall disease activity (PDA) and the parent assessment of overall well-being (PWB).

From: Proceedings of the 25th European Paediatric Rheumatology Congress (PReS 2018)

PDA vs PWB Total Agreement Low discordance High discordance
Median (ICR) ≤+/-1 PDA >1-3 worse PWB >1-3 worse PDA >3 worse PWB >3 worse
Female gender, n (%) 5956 (66.2) 4452 (65.4) 515 (70.3) 477 (69.1) 274 (64.9) 238 (69.8)
Age at visit (years) 11.6 (7.7; 14.8) 11.5 (7.6; 14.8) 11.3 (7.6; 14.8) 12.7 (8.7; 15.6) 10.8 (7.1; 14.9) 12.6 (9.3; 15.4)
Disease duration 4.0 (1.8; 7.0) 4.0 (1.9; 7.0) 3.5 (1.3; 6.7) 4.0 (1.8; 7.4) 3.5 (1.3; 6.6) 3.9 (1.8; 7.2)
Active Joints 0 (0; 2) 0 (0; 1) 1 (0; 3) 0 (0; 2) 1 (0; 2) 0 (0; 2)
Morning stiffness, n (%) 2923 (33.7) 1875 (28.6) 400 (56.2) 301 (45.2) 222 (54.4) 125 (38.1)
Stiffness duration (min) 15-30 15-30 15-30 15-30 15-30 <15
Pain score 1.0 (0; 3.5) 0.5 (0; 2.5) 3.5 (1.5; 5.5) 2.0 (0.5; 5.0) 2.5 (0.0; 5.0) 2.0 (0.0; 5.0)
Quality of Life 3 (1; 7) 2 (0; 6) 5 (3; 9) 7 (4; 11) 4 (2; 8) 8 (4; 11)
  1. Values are the median (1st, 3rd quartile), unless indicated n (%). PWB, parent global assessment of overall well-being (range 0-10); PDA, parent global assessment of disease activity (range 0-10)