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Table 1 (abstract P26). Results from final ranking survey. Top 7 priorities from each group, ranked from highest to lowest priorities

From: Proceedings of the 2018 Childhood Arthritis and Rheumatology Research Alliance (CARRA) Scientific Meeting

AF

Cure JM*

LFA*

Genetic/Environmental Etiology

New Treatments

Genetic/Environmental Etiology

Personalized medicine

Flares (triggers, prevention, treatment)

Quality of life

Medication side effects

Medication side effects

Medication side effects

Growth and development

Standards to measure disease activity and/or remission

Pain management

Flares (triggers, prevention, treatment)

Genetic/Environmental Etiology

Long-term health/prognosis

New Treatments

JM complications ( i.e. rash, calcinosis, lipodystrophy)

Fatigue

Pain management

Risk of other autoimmune diseases

Flares (triggers, prevention, treatment)

  1. *For Cure JM and LFA, cure was the highest ranking priority. Our aim for this study was to identify research priorities other than cure and thus we eliminated these from the final results