Table 2 Key themes identified with Framework analysis

• Young people’s experiences of research participation

◦ Experience of research participation as children

◦ Feedback on research participation

◦ Altruism as a motivator for research participation

• Beliefs about and experiences of young people being involved in research

◦ Motivations for involvement

◦ Role of experience of condition in involvement

◦ Experience of involvement

• Challenges to, and facilitators of, young people’s involvement

◦ Being taken seriously by and listened to by researchers

◦ Access to research and researchers

◦ Clear roles and importance of co-production

◦ Flexibility in involvement approaches

• Practical considerations when involving young people in research

◦ Timing of involvement

◦ Convenience of activity

◦ Role of incentives

◦ Patient-led versus researcher-led involvement