Table 1 Research priority areas discussed within the focus groups

Research priority areas

Basic Science - Research that tries to increase our understanding of rheumatic disease and of finding a cure. Results may not have immediate or direct benefit to patients

Clinical Medicine and Science – Research focusing on finding better treatments for rheumatic disease

Psychosocial – Research which focuses on improving physical, psychological, social and spiritual outcomes for young people diagnosed with rheumatic disease and their families

Health services – Research that explores the best way to organise, manage, finance and deliver care to young people with rheumatic disease and their families

Public Health – Research which focuses on putting policies in place, laws or population wide measures to improve outcomes for young people with rheumatic disease and their families