|
Self-management, patient is seen without parents
|
35
|
79.5
|
|
Disease and treatment knowledge
|
39
|
88.6
|
|
Name of disease
|
39
|
88.6
|
|
Being able to describe disease course
|
32
|
72.7
|
|
Signs and symptoms of disease flare
|
33
|
75.0
|
|
Signs and symptoms that require an urgent consultation
|
30
|
68.1
|
|
Treatment information
|
40
|
90.9
|
|
Possible side effects of treatment
|
36
|
81.8
|
|
Health behavior
|
31
|
70.4
|
|
Risk behavior
|
29
|
65.9
|
|
Alcohol use, smoking, illegal drugs use
|
35
|
79.5
|
|
Nutrition
|
27
|
61.3
|
|
Sports
|
31
|
70.4
|
|
Mental health
|
27
|
61.3
|
|
Sexuality, contraception and sexual health
|
34
|
77.2
|
|
Future plans
|
33
|
75.0
|
|
Educational achievements
|
30
|
68.1
|
|
Vocational readiness
|
22
|
50.0
|
|
Knowledge of support resources
|
28
|
63.6
|
|
Mobility, living alone, travel
|
24
|
54.5
|
|
Medical summary available
|
34
|
77.2
|
|
Knowledge of differences between pediatric and adult rheumatology care
|
36
|
81.8
|
|
Knowledge about the health system (health insurance, general practitioner/family doctor, health care specialist)
|
21
|
47.7
|
|
Transfer readiness
|
28
|
63.6
|
|
First contact to adult rheumatologist
|
40
|
90.9
|
