Table 3 Components of existing individualized transition plans
Checklist componentsa | Number | Percent |
|---|---|---|
Self-management, patient is seen without parents | 35 | 79.5 |
Disease and treatment knowledge | 39 | 88.6 |
Name of disease | 39 | 88.6 |
Being able to describe disease course | 32 | 72.7 |
Signs and symptoms of disease flare | 33 | 75.0 |
Signs and symptoms that require an urgent consultation | 30 | 68.1 |
Treatment information | 40 | 90.9 |
Possible side effects of treatment | 36 | 81.8 |
Health behavior | 31 | 70.4 |
Risk behavior | 29 | 65.9 |
Alcohol use, smoking, illegal drugs use | 35 | 79.5 |
Nutrition | 27 | 61.3 |
Sports | 31 | 70.4 |
Mental health | 27 | 61.3 |
Sexuality, contraception and sexual health | 34 | 77.2 |
Future plans | 33 | 75.0 |
Educational achievements | 30 | 68.1 |
Vocational readiness | 22 | 50.0 |
Knowledge of support resources | 28 | 63.6 |
Mobility, living alone, travel | 24 | 54.5 |
Medical summary available | 34 | 77.2 |
Knowledge of differences between pediatric and adult rheumatology care | 36 | 81.8 |
Knowledge about the health system (health insurance, general practitioner/family doctor, health care specialist) | 21 | 47.7 |
Transfer readiness | 28 | 63.6 |
First contact to adult rheumatologist | 40 | 90.9 |