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Table 5 Needs Assessment

From: Challenges in transitioning adolescents and young adults with rheumatologic diseases to adult Care in a Developing Country - the Brazilian experience

  Answers N (%)
What are your needs regarding transition? Center needs more tools/resources to implement transition. 51 (67.1)
Development of consensus criteria, with specific guidelines would be useful to guide and standardize the transition process. 45 (59)
No needs. We are satisfied with the way our center does transition. 11 (14.5%)
No needs. Our staff is properly trained to deal with transition. 11 (14.5)
No needs. Our center has sufficient resources and staff to deal with transition. 8 (10.5)
No needs. Our center devotes sufficient time for transition 5 (6.6%)
  Answers N (%)
What are the barriers for successful transition? Lack of general practitioners to assist the transition process. Does not difficult: 16 (21,0)
Difficult a bit: 29 (38.2)
Difficult a lot: 30 (39.5)
No answer: 1 (1.3)
Lack of rheumatology centers available for transitioned patients. Does not difficult: 9 (11.9)
Difficult a bit: 10 (13.1)
Difficult a lot: 56 (73.7)
No answer: 1 (1.3)
Emotional attachment between the pediatric rheumatology team and the patient/family. Does not difficult: 4 (5.3)
Difficult a bit: 32 (42.1)
Difficult a lot 40 (52.6)
Lack of patients’ understanding about their disease. Does not difficult: 13 (17.1)
Difficult a bit: 36 (47.4)
Difficult a lot: 27 (35.5)
The patient’s inability to take responsibility for their own care. Does not difficult: 5 (6.6)
Difficult a bit: 36 (47.4)
Difficult a lot: 34 (44.7)
No answer: 1 (1.3)
Lack of devoted time for transition in pediatric rheumatology centers. Does not difficult: 4 (5.3)
Difficult a bit: 42 (55.3)
Difficult a lot: 30 (39.4)
Lack of knowledge and training of pediatric rheumatology team. Does not difficult: 9 (11.8)
Difficult a bit: 37 (48.7)
Difficult a lot: 29 (38.2)
No answer: 1 (1.3)