Table 4 Transition practices
Answers | N (%) | |
|---|---|---|
Who is primarily responsible for the transition process? | The patient himself. | 30 (39.5) |
The family of the patient. | 16 (21.1) | |
The pediatric rheumatology center. | 67 (88.2) | |
The adult rheumatology center that will receive the patient. | 26 (34.2) | |
Answers | N (%) | |
On a scale from 0 to 5, how important it is that the patient schedule their own appointments? | 0 | 5 (6.6) |
1 | 3 (4.0) | |
2 | 11 (14.5) | |
3 | 9 (11.8) | |
4 | 12 (15.8) | |
5 | 36 (47.3) | |
Answers | N (%) | |
What resources do you find useful to facilitate transition? | Educational pamphlets targeted to the patient (printed). | Very useful: 36 (47.4) |
A bit useful: 39 (51.3) | ||
Useless: 1 (1,3) | ||
Educational pamphlets targeted to the patient (online). | Very useful: 29 (38.1) | |
A bit: 43 (56.6) | ||
Useless: 4 (5.3) | ||
Educational group sessions regarding the transition process. | Very useful: 53 (69.8) | |
A bit useful: 21 (27.6) | ||
Useless: 2 (2.6) | ||
Discuss the transition process during medical visits. | Very useful: 72 (97.3) | |
A bit useful: 2 (2.7) | ||
Useless: 0 | ||
No answer: 2 | ||
Questionnaires to assess patients’ knowledge about transition. | Very useful: 39 (51.3) | |
A bit useful: 33 (43.4) | ||
Useless: 4 (5.3) | ||
Use of direct forms of communication to educate and answer questions: phone calls, emails, text messages, whatsapp, etc. | Very useful: 41 (53.9) | |
A bit useful: 31 (40.8) | ||
Useless: 4 (5.3) | ||
Use social media to educate and answer questions: Facebook, Twitter, Instagram, others. | Very useful: 38 (50.7) | |
A bit useful: 29 (38.7) | ||
Useless: 8 (10.7) | ||
No reply: 1 | ||
Printed copy of the medical records. | Very useful: 31 (41.3) | |
A bit useful: 40 (53.3) | ||
Useless: 4 (5.3) | ||
No reply: 1 | ||
Online version of the medical records. | Very useful: 40 (53.3) | |
A bit useful: 27 (36.0) | ||
Useless: 8 (10.7) | ||
No reply: 1 |