Table 2 Health related quality of life measured with DISABKIDS generic instrument for chronic conditions (DCGM-37), and differences in self-report and parent-report
Girls n = 38 Mean (SD) | Girls’ parents n = 38 Mean (SD) | Boys n = 15 Mean (SD) | Boys’ parents n = 15 Mean (SD) | Girls parents versus boys parents | Girls versus boys | |||
|---|---|---|---|---|---|---|---|---|
Median (range) | Median (range) | P-value1 | Median (range) | Median (range) | P- Value1 | P- Value2 | P- Value3 | |
Independence | 75.66 (13.55) | 69.71 (17.51) | 71.11 (21.10) | 75.28 (19.51) | 0.23 | 0.67 | ||
75.00 (50.00–100) | 70.83 (29.17–100) | 0.03 | 75.00 (25.00–100) | 79.17 (20.83–100) | 0.17 | |||
Physical limitation | 65.94 (21.04) | 58.66 (22.25) | 0.01 | 62.78 (24.42) | 66.67 (24.14) | 0.21 | 0.11 | 0.70 |
66.67 (20.83–100) | 54.17 (20.83–100) | 62.50 (8.33–100) | 70.83 (0.00–100) | |||||
Social inclusion | 70.94 (17.82) | 66.99 (18.82) | 0.18 | 69.72 (23.06) | 72.94 (19.55) | 0.67 | 0.19 | 0.92 |
75.00 (37.50–100) | 62.50 (37.50–100) | 66.67 (20.83–100) | 75.00 (20.83–100) | |||||
Social exclusion | 83.55 (15.59) | 78.24 (19.11) | 0.03 | 83.61 (17.64) | 87.22 (21.45) | 0.26 | 0.05 | 0.85 |
87.50 (33.33–100) | 81.25 (33.33–100) | 87.50 (33.33–100) | 91.67 (16.67–100) | |||||
Emotion | 75.99 (23.48) | 67.09 (23.08) | <0.01 | 70.00 (22.66) | 71.30 (26.02) | 0.92 | 0.48 | 0.32 |
82.14 (7.14–100) | 66.07 (10.71–100) | 67.86 (14.29–100) | 78.57 (7.14–100) | |||||
Medication | 71.59 (25.67) | 65.62 (2.93) | 0.11 | 84.09 (15.68) | 75.32 (18.28) | 0.11 | 0.36 | 0.19 |
77.08 (20.00–100) | 75.00 (0.00–100) | 87.50 (54.17–100) | 79.17 (50.00–100) | |||||
Missinga | 6 | 2 | 4 | 2 | ||||
General transformed score | 74.24 (16.13) | 67.93 (17.59) | <0.01 | 73.31 (17.99) | 74.89 (18.60) | 0.90 | 0.16 | 0.94 |
78.77 (37.50–100) | 69.93 (30.41–96.8) | 73.65 (29.05–100) | 74.19 (23.65–100) |