Table 3 Parent-reported outcomes at cross-sectional visit in patients still receiving ETN
| Â | No assessed | Â |
|---|---|---|
Median (IQR) physical function scorea | 420 | 0 (0; 3) |
No (%) of patients with physical function score = 0 | 420 | 220 (52.4) |
Median (IQR) HRQL scoreb | 417 | 2 (0; 5) |
No (%) of patients with HRQL score > 1 DS above the mean of healthy children | 417 | 92 (22.1) |
Median (IQR) HRQL PhH scorec | 417 | 1 (0; 3) |
No (%) of patients with HRQL PhH score > 1 DS above the mean of healthy children | 417 | 203 (48.7) |
Median (IQR) HRQL PsH scorec | 417 | 1 (0; 3) |
No (%) of patients with HRQL PsH > 1 DS above the mean of healthy children | 417 | 82 (19.7) |
Median (IQR) VAS well-beingd | 420 | 0.5 (0; 3) |
No (%) of patients with VAS well-being = 0 | 420 | 193 (46) |
Median (IQR) VAS paind | 420 | 0 (0; 2,5) |
No (%) of patients with VAS pain = 0 | 420 | 215 (51.2) |
No (%) of patients with VAS pain ≤1 | 420 | 289 (68.8) |
No (%) of patients with VAS pain from 1.5 to 5 | 420 | 99 (23.6) |
No (%) of patients with VAS pain >5 | 420 | 32 (7.6) |
Median (IQR) VAS disease activityd | 420 | 0 (0; 2) |
No (%) of patients with VAS disease activity = 0 | 420 | 224 (53.3) |
No (%) of patients with no morning stiffness | 420 | 319 (76) |
Disease activity state | ||
 No (%) of patients with remission | 421 | 286 (67.9) |
 No (%) of patients with continued activity | 421 | 86 (20.4) |
 No (%) of patients with disease flare | 421 | 49 (11.6) |
No (%) of parents satisfied with their child’s illness outcome | 399 | 330 (82.7) |