Table 1 Demographic characteristics
From: An assessment of variables affecting transition readiness in pediatric rheumatology patients
Characteristic (N = 76) | Value |
|---|---|
Demographics | |
Age (years) (mean ± s.d.) | 17.0 ± 1.8 years |
Gender | |
Female | 71 % (54) |
Male | 29 % (22) |
Race | |
Caucasian | 94 % (67) |
African-American | 4 % (3) |
Pacific Islander | 2 % (1) |
Ethnicity | |
Hispanic | 10 % (7) |
Non-Hispanic | 90 % (29) |
Parent > age 40 | 86 % (60) |
Guardian education | |
High school or higher | 86 % (60) |
College and higher | 31 % (22) |
Number of siblings (mean ± s.d.) | 2.2 ± 1.3 |
Family member with a similar disease | 54 % (39) |
Disease Associated Variables | |
Disease duration (years) (mean ± s.d.) | 4.5 ± 3.3 |
Diagnosis | |
Juvenile idiopathic arthritis | 80 % (60) |
Systemic lupus erythematosus | 8 % (6) |
Juvenile fibromyalgia (primary or secondary) | 16 % (12) |
Other | 28 % (21) |
Taking medications | 84 % (64) |
Routine labs required | 58 % (42) |
Good self-reported understanding of disease | 94 % (68) |
Good self-reported understanding of medications | 85 % (62) |
Patient Education/ Life Skills and Behaviors | |
Currently living with guardians | 99 % (75) |
Currently attending school | 91 % (68) |
Grade level currently attending | |
8th-10th grade | 35 % (24) |
11-12th grade | 47 % (32) |
College | 18 % (12) |
Summer Job (ever) | 57 % (43) |
Have a driver’s license | 43 % (33) |
Tobacco Use (yes) | 4 % (3) |
Independence Outcomes | |
Patient indicated he/she would call the doctor him/herself if not feeling well. | 10 % (7) |
Patient reported he/she would call the doctor or pharmacy first if had no refills on medication. | 57 % (41) |
Patient makes own routine doctor’s appointments. | 18 % (13) |
Patient calls him/herself to cancel a doctor’s appointment if cannot make it. | 70 % (51) |
Patient reports he/she takes medications as prescribed without someone reminding him/her. | 87 % (62) |