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Table 1 Demographic characteristics

From: An assessment of variables affecting transition readiness in pediatric rheumatology patients

Characteristic (N = 76) Value
Demographics  
Age (years) (mean ± s.d.) 17.0 ± 1.8 years
Gender  
Female 71 % (54)
Male 29 % (22)
Race  
Caucasian 94 % (67)
African-American 4 % (3)
Pacific Islander 2 % (1)
Ethnicity  
Hispanic 10 % (7)
Non-Hispanic 90 % (29)
Parent > age 40 86 % (60)
Guardian education  
High school or higher 86 % (60)
College and higher 31 % (22)
Number of siblings (mean ± s.d.) 2.2 ± 1.3
Family member with a similar disease 54 % (39)
Disease Associated Variables  
Disease duration (years) (mean ± s.d.) 4.5 ± 3.3
Diagnosis  
Juvenile idiopathic arthritis 80 % (60)
Systemic lupus erythematosus 8 % (6)
Juvenile fibromyalgia (primary or secondary) 16 % (12)
Other 28 % (21)
Taking medications 84 % (64)
Routine labs required 58 % (42)
Good self-reported understanding of disease 94 % (68)
Good self-reported understanding of medications 85 % (62)
Patient Education/ Life Skills and Behaviors  
Currently living with guardians 99 % (75)
Currently attending school 91 % (68)
Grade level currently attending  
8th-10th grade 35 % (24)
11-12th grade 47 % (32)
College 18 % (12)
Summer Job (ever) 57 % (43)
Have a driver’s license 43 % (33)
Tobacco Use (yes) 4 % (3)
Independence Outcomes  
Patient indicated he/she would call the doctor him/herself if not feeling well. 10 % (7)
Patient reported he/she would call the doctor or pharmacy first if had no refills on medication. 57 % (41)
Patient makes own routine doctor’s appointments. 18 % (13)
Patient calls him/herself to cancel a doctor’s appointment if cannot make it. 70 % (51)
Patient reports he/she takes medications as prescribed without someone reminding him/her. 87 % (62)