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Table 2 Themes of the group sessions, the timing and the staff needed to organize a group session

From: Design and acceptance of Rheumates@Work, a combined internet-based and in person instruction model, an interactive, educational, and cognitive behavioral program for children with juvenile idiopathic arthritis

GS

Theme/Timing

 

Staff (number)

1

What is JIA and what goes wrong with the immune system? /At the start

­- Plenary: Children and parents are taught what JIA is and are given tips on how to be physically active despite certain limitations.

PT (2), Phys (1)

­- Children: setting goals for the next 14 weeks on the basis of their fittest level of activity

­- Parents: introducing themselves to one another and exploring the burden of having a child with JIA.

­- The children sign the declaration of commitment

­- The children formulate a goal for the health provider

2

Excuses/week 4 or 5

­- Limits to physical activity. Some children have to be encouraged to be physically active and others have to be taught to taper physical activity. In both cases excuses are made up, which are discussed during this group session.

PT (1) Phys (1) S(1)

­- Children: perform a role play and create a goal for the health professionals.

Psych (1)

­- Parents: discuss the burdens that were mentioned in Group Session 1 and are given tips by the health professionals on how to deal with these burdens.

3

Doing things together / Week 10

­- Skill games are played with the children’s friends and/ or their siblings, and with the parents.

PT (1) S (2)

4

What have we learnt and how to persevere / Week 14

­- Plenary: repetition of the theory. Doing a quiz

PT (1) Phys(1)

­- The health professionals have to perform the goal set by the children previously.

­- Hand out the Certificates of Participation and crack open a bottle of bubbly to celebrate the successful completion of R@W.

  1. GS = Group session; P = Physiotherapist, Phys = Physician; Psych = Psychologist; S = student, +/- desirable, but not indispensible