From: An evaluation of a juvenile idiopathic arthritis retreat for families
Themes | Examples of representative quotes from parents |
---|---|
Learned how to encourage, support, and recognize my child | Father – “We learned how to work together to encourage and help our son (brother) to accomplish difficult tasks” |
Mother – “To remember to encourage him to always do his best” | |
Mother – “It is okay to push her + stop so much over protecting” | |
Pain management | Mother – “The discussion [discussion] on pain management was excellent!” |
Mother – “Some pain management skills + things to talk about” | |
Father – “The presentation on pain management from a psychological perspective was helpful” | |
Social support | Father – “It helps to understand how other parents cope” |
Mother – “We know the Arthritis Foundation is always there to support us” | |
Mother – “Just being with other families who are in the same shoes” | |
Staying positive/Encouragement | “We learned to try our best and encourage each other with Alpine Tower” |
“Encouragement and positive support and feedback” | |
“How to encourage and cheer for not only your family but others. Everyone is in this together. Not to the same extent, but still the same” | |
“To stay positive” | |
“How to get along together” | |
“I think my family learned to be more patient with each other” |