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Table 1 Demographics, disease characteristics and medications.

From: Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey

 

N (%)

Mean (SD)

or

Median (Range)

Gender

  

   Male

11 (21%)

 

   Female

41 (79%)

 

Mean age (SD)#

 

15.9 (2.1)

   Race/Ethnicity

  

   Caucasian

26 (50%)

 

   Asian

12 (23%)

 

   Latino

4 (8%)

 

   African American

3 (6%)

 

   Other/Unknown

7 (13%)

 

Diagnosis

  

   Juvenile Idiopathic Arthritis

23 (44%)

 

Oligoarthritis

1 (2%)

 

Rheumatoid factor positive polyarthritis

3 (6%)

 

Rheumatoid factor negative polyarthritis

8 (15%)

 

Systemic arthritis

8 (15%)

 

Enthesitis-related arthritis

2 (4%)

 

Psoriatic arthritis

1 (2%)

 

   Systemic Lupus Erythematosus

18 (35%)

 

   Juvenile Dermatomyositis

4 (8%)

 

   Mixed Connective Tissue Disease

3 (6%)

 

   Scleroderma

2 (4%)

 

   Idiopathic Thrombocytopenic Purpura

1 (2%)

 

   Periodic Fever Syndrome

1 (2%)

 

Median Disease Duration (Range)#

 

5.3 (0-15)

Mean Self-Reported Disease Activity (SD)*

 

4.1 (2.6)

Medications

  

   Corticosteroids

30 (58%)

 

   Methotrexate or Leflunomide

24 (45%)

 

   Hydroxychloroquine

19 (37%)

 

   Biologic

15 (29%)

 

   Immunosuppressant+

13 (25%)

 

   Intravenous Immunoglobulin

2 (4%)

 

   Non-Steroidal Anti-Inflammatory Drug

2 (4%)

 
  1. # Years.
  2. * Disease activity reported on a 0-10 Likert scale, with 0 meaning "Not Active" and 10 meaning "Very Active."
  3. + Immunosuppressants include cyclophosphamide, azathioprine, myophenolate mofetil, tacrolimus, and cyclosporine.