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Table 4 Results on the Child Vulnerability Scale (CVS) in parents of children with JIA, compared with a reference group of Dutch parents of both healthy and chronically ill children

From: Health related quality of life and parental perceptions of child vulnerability among parents of a child with juvenile idiopathic arthritis: results from a web-based survey

  JIA parents (N = 168) Reference group healthy child (N = 450) Reference group chronically ill child (N = 69)
CVS Median (25-75%) Median (25-75%)   p Median (25-75%)   p
Total score CVS - range 0-24 6 (3–11) 1 (0–3) <.001b 4 (1–6) <.001b
  N % N % p N % p
Above cut-off score 52 31.0 5 1.1 <.001a 5 7.2 <.001a
Items, (mostly) true: N % N % p N % p
1. In general, my child seems less healthy than other children. 52 31.0 9 2.0 <.001a 6 8.7 <.001a
2. I often think about calling the doctor about my child. 22 13.1 4 0.9 <.001a 6 8.7 .340a
3. When there is something going around my child usually catches it. 50 29.8 26 5.8 <.001a 9 13.0 .008a
4. I often check on my child at night to make sure that s/he is okay. 40 23.8 37 8.2 <.001a 13 18.8 .404a
5. Sometimes I get concerned that my child doesn’t look as healthy as s/he should. 55 32.7 15 3.3 <.001a 9 13.0 .002a
6. I often have to keep my child indoors because of health reasons. 16 9.5 1 0.2 <.001a 6 8.7 .842a
7. I get concerned about circles under my child’s eyes. 40 23.8 13 2.9 <.001a 8 11.6 .034a
8. My child gets more colds than other children I know. 50 29.8 17 3.8 <.001a 10 14.5 .014a
  1. a = Chi2, b = Mann-Whitney U test.
  2. Higher scores represent more perceived vulnerability of the child.
  3. NOTE: Cut-off point high perceived vulnerability: total score of 10 and above [28].