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Table 4 Results on the Child Vulnerability Scale (CVS) in parents of children with JIA, compared with a reference group of Dutch parents of both healthy and chronically ill children

From: Health related quality of life and parental perceptions of child vulnerability among parents of a child with juvenile idiopathic arthritis: results from a web-based survey

 

JIA parents (N = 168)

Reference group healthy child (N = 450)

Reference group chronically ill child (N = 69)

CVS

Median (25-75%)

Median (25-75%)

  p

Median (25-75%)

  p

Total score CVS - range 0-24

6 (3–11)

1 (0–3)

<.001b

4 (1–6)

<.001b

 

N

%

N

%

p

N

%

p

Above cut-off score

52

31.0

5

1.1

<.001a

5

7.2

<.001a

Items, (mostly) true:

N

%

N

%

p

N

%

p

1. In general, my child seems less healthy than other children.

52

31.0

9

2.0

<.001a

6

8.7

<.001a

2. I often think about calling the doctor about my child.

22

13.1

4

0.9

<.001a

6

8.7

.340a

3. When there is something going around my child usually catches it.

50

29.8

26

5.8

<.001a

9

13.0

.008a

4. I often check on my child at night to make sure that s/he is okay.

40

23.8

37

8.2

<.001a

13

18.8

.404a

5. Sometimes I get concerned that my child doesn’t look as healthy as s/he should.

55

32.7

15

3.3

<.001a

9

13.0

.002a

6. I often have to keep my child indoors because of health reasons.

16

9.5

1

0.2

<.001a

6

8.7

.842a

7. I get concerned about circles under my child’s eyes.

40

23.8

13

2.9

<.001a

8

11.6

.034a

8. My child gets more colds than other children I know.

50

29.8

17

3.8

<.001a

10

14.5

.014a

  1. a = Chi2, b = Mann-Whitney U test.
  2. Higher scores represent more perceived vulnerability of the child.
  3. NOTE: Cut-off point high perceived vulnerability: total score of 10 and above [28].