Variables common to four datasets (n = 19) | Variables common to three datasets (n = 16) | Variables common to two datasets (n = 24) |
---|---|---|
Date of birth and patient code | Patient name | Postcode |
Gender | Patient centre | Death |
Ethnicity | Diagnosis date | Fatigue due to JDM |
Family history | JDM rash | Distribution of rash |
Onset date | Skin erythema | Abdominal pain due to JDM |
Height/Weight | MRI consistent with JDM at diagnosis | Neurological involvement |
Symmetrical muscle weakness | CMAS | Weight loss due to JDM |
Gottron’s or heliotrope rash | Gottron’s sign | Alopecia due to JDM |
Skin ulcers | Shawl sign | Nail-fold changes |
Dysphagia or dysphonia | Gastro-intestinal disease / ulceration due to JDM | Dysphagia |
Calcinosis | Fever due to JDM | Dysphonia |
Cardiac involvement | Abnormal pulmonary function tests | Respiratory symptoms |
Arthritis | Contractures | Myalgia |
Interstitial lung disease | Lipodystrophy | Eye disease (glaucoma/cataract) |
MMT8 | Autoantibody data (more than ANA) | Raynaud’s |
Muscle enzymes elevated | Physician global assessment | Parental Visual Analogue Scale (VAS) |
EMG changes consistent with JDM at diagnosis | Â | Pain VAS |
Muscle biopsy consistent with JDM | Â | CHAQ |
Medication history | Â | MITAX/MYOACT |
 |  | Hospitalisation since last visit |
 |  | School absence |
 |  | Other significant diagnosis |
 |  | Sporting activities |
 |  | Pubertal delay |