Table 1 SDI scores and organ-system involvement, and HRQOL scores
Variables | Descriptives (n=169) |
|---|---|
SDI total score | Â |
Mean ± SD (range)(n) | 36±39 (1-183) |
Median | Median =24 |
Age (years) | 15 ± 3 (6-18) |
Disease duration (months) | Â |
Mean ± SD (range) (n) | 36±39 (1-183) |
Median | Median =24 |
Renal %(n) | 17 (29) |
Neuropsychiatric %(n) | 14 (24) |
Skin %(n) | 11 (18) |
Musculoskeletal %(n) | 6 (10) |
Peripheral vascular %(n) | 3 (5) |
Ocular %(n) | 2 (4) |
Pumonary %(n) | 2 (4) |
Diabetes %(n) | 2 (3) |
Cardiovascular %(n) | 2 (3) |
Gastrointestinal %(n) | 1(2) |
Premature gonadal failure %(n) | 1 (2) |
Malginancy %(n) | 0 (0) |
SMILEY total score | Â |
Mean ± SD (range) (n) Child | 65 ± 14 (33-98) (166) |
Parent | 62 ± 15 (28-96) (153) |