Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: a Delphi survey and consensus conference process followed by feasibility testing

Table 2 Demographic and disease characteristics of child and youth participants

	Children aged 4-7 years (n = 20)		Youth aged 8-18 years (n = 77)
Characteristic	M ± SD	n (%)	M ± SD	n (%)
Age (years)	5.9 ± 0.9		13.5 ± 3.1
Gender
Female		12 (60.0)		49 (63.6)
Male		8 (40.0)		28 (36.4)
Primary Diagnosis
Juvenile idiopathic arthritis
Enthesitis related		0 (0.0)		10 (13.0)
Oligoarthritis		3 (15.0)		6 (7.8)
Polyarthritis (RF negative)		3 (15.0)		13 (16.9)
Polyarthritis (RF positive)		1 (5.0)		4 (5.2)
Psoriatic		1 (5.0)		3 (3.9)
Systemic		0 (0.0)		6 (7.8)
Unknown subtype		3 (15.0)		3 (3.9)
Juvenile dermatomyositis		2 (10.0)		5 (6.5)
Systemic lupus erythematosus		0 (0.0)		4 (5.2)
Other		2 (10.0)		16 (20.8)
Not yet diagnosed		1 (5.0)		7 (9.1)
Visit type
Follow-up		17 (85.0)		63 (81.8)
New patient		3 (15.0)		14 (18.2)
Duration of pain (years)	2.1 ± 1.6^a		5.3 ± 4.3
Physicians disease severity rating (10 cm VAS)	2.1 ± 2.1^b		2.4 ± 1.8^c

^a, data are for n = 19 children; ^b, data are for n = 14 children; ^c, data are for n = 44 youth; RF = rheumatoid factor; VAS = visual analogue scale.

ISSN: 1546-0096