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Table 2 Myositis disease severity characteristics at the time of the survey*

From: Parents' perception of self-advocacy of children with myositis: an anonymous online survey

Survey item

Patients

N (%)**

 

≤ 15.0 years of age

> 15.0 years of age

Right now, can your child do a sit-up without help?

142 (68.6)

32 (71.1)

Right now, can your child climb the stairs without help or using support?

168 (81.2)

36 (80.0)

Right now, can your child stand from a seated position without assistance or support?

179 (86.5)

35 (77.8)

Right now, does your child have a swallowing problem?

12 (5.8)

4 (8.9)

  1. Patients answering in the affirmative
  2. *The reminder of the parents answered "Do not know".
  3. **N = 207 for patients ≤ 15.0 years of age; N = 45 for patients > 15.1 years of age.